A world traveler, A beautiful little girl and FOP

A few weeks ago I received a call from Incredible Features.  They needed someone to help assist a photographer/reporter, Jeff Werner,  who would be on assignment near me. They are doing a feature story on a little girl who is battling FOP.

I was available the two days that they needed someone so I said yes, why not, this sounded like it would be a fun adventure!  Holly from Incredible Features sent me more information.  Once I started to read about this little girl and what FOP was, I thought I was in way over my head.

For those of you who don't know me, I am extremely sensitive and cry at everything.  While I was reading Ali's story, I started crying.  When my husband came home from work, I was still crying, and I told him I had made a huge mistake.  I told Holly I would help out, and I just was not sure I could do it.  FOP is a very serious and rare disease, it has changed the way this little girl and her family lives life.  Of course, Nate being the calm person he is explained, how I would be helping this family by offering my services, so Incredible Feature could do their story and bring awareness to the masses about what FOP is.

By the end of the two days, I was in love with this family and little girl!   They are so positive and so motivated to help others.  They want to educate the masses on what FOP is and give their little girl an awesome life, as she battles this disease.   Of course they would do anything in the world so that their little girl would not have to have this battle, but they are doing everything to educate themselves and protect their little girl.

I encourage all of you to take a few minutes and read Ali's story and become educated on what FOP is so, that maybe you can help another: Ali's Army


Ali and Family,

It was an honor to meet all of you, I am so glad I was able to help out, even if my part was very small! 

Wishing you the best of everything!
Susan

My Rose of Sharon in full bloom!  So beautiful!